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Home Nursing Care After Brain Tumour Surgery: Glioblastoma Case Study

Post-Surgical Glioblastoma Home <a href="https://athomecare.in/">Care</a> Case Study | Gurgaon, Haryana
Clinical Case Study

Home Healthcare After Brain Tumour Surgery: A Glioblastoma Case From Gurgaon

A 64-year-old retired lecturer underwent surgery for Glioblastoma Grade IV in a Gurgaon hospital. This case study documents how structured home nursing, physiotherapy, and cognitive support helped her recover safely at home with her family.

Age
64 Years
Gender
Female
Location
Sushant Lok, Gurgaon
Primary Condition
Glioblastoma Grade IV
Duration of Care
5 Months
Outcome
Stable, Home-Based

Patient Background

Mrs. N.S. is a 64-year-old retired college lecturer living in Sushant Lok Phase 1, Gurgaon, with her husband. Her daughter also lives nearby and participates in her care. Before her illness, she was fully independent in all daily activities. She managed her household, read regularly, and maintained an active social life.

Her medical history included hypertension for about 10 years and hypothyroidism, both managed with oral medication. She had no previous neurological disease, no history of stroke, and no known family history of brain tumours.

Clinical Note

The patient had two well-controlled chronic conditions before diagnosis. Her baseline functional status was high. This meant that any decline observed after surgery could be clearly attributed to the tumour and its treatment, rather than pre-existing disability.

How the Illness Began

Over roughly three months, her family noticed gradual changes. She started forgetting recent conversations and repeating the same questions. She struggled to recognise familiar routes while walking in her locality. Her headaches became more frequent, especially in the mornings.

Her family initially thought these were age-related memory changes. This is a common assumption and one of the reasons brain tumours in older adults are sometimes diagnosed later than ideal.

Over time, her concentration reduced further. She began having difficulty finding common words during conversations, a symptom called expressive aphasia. Her personality started shifting. She became more withdrawn and sometimes confused.

Progressive memory loss, word-finding difficulty, and morning headaches in an older adult warrant urgent neurological evaluation, even when symptoms develop slowly. Early imaging can change the course of treatment.

The turning point came when she experienced a generalized seizure at home. Her family immediately took her to a tertiary care hospital in Gurgaon, where further investigations confirmed the diagnosis.


Clinical Diagnosis

At the hospital, the medical team conducted a thorough evaluation.

Investigations Performed

  • MRI Brain with contrast
  • CT Brain
  • EEG (electroencephalogram)
  • Complete blood profile
  • Detailed neurological examination
  • Formal cognitive assessment
  • Histopathology after surgical tumour removal

Diagnosis Confirmed

Based on imaging and histopathology, the diagnosis was Glioblastoma, WHO Grade IV. This is the most aggressive type of primary brain tumour in adults. It originates from glial cells and tends to grow rapidly.

For families wanting a deeper understanding of how brain tumours are diagnosed and treated surgically, our detailed guide on diagnosis and surgical treatment of brain tumours provides further reading.

Associated Clinical Findings

Alongside the primary diagnosis, the following conditions were identified:

Cognitive Impairment
Short-term memory loss with inability to retain events from the same day
Expressive Aphasia
Difficulty finding words, affecting communication
Left-Sided Weakness
Mild weakness in left arm and leg, increasing fall risk
Focal Seizures
Required ongoing anti-epileptic medication and seizure monitoring
Steroid-Induced Diabetes
Developed during hospital treatment with high-dose corticosteroids
Moderate Malnutrition
Reduced oral intake during illness and hospitalization

Hospital Treatment

Mrs. N.S. underwent a right frontal craniotomy with tumour debulking. This is a major neurosurgical procedure where a portion of the skull is temporarily removed to access and reduce the tumour mass.

She was then moved to the Neuro ICU for close monitoring. During her 21-day hospital stay, she received:

  • Anti-epileptic medication to prevent further seizures
  • High-dose corticosteroids to reduce brain swelling
  • Speech therapy sessions
  • Physiotherapy for mobility and left-sided weakness
  • Oncology consultation for further treatment planning
  • Radiation planning
  • Temozolomide chemotherapy initiation

Condition at Discharge

By the time of discharge, the surgical wound was healing. However, her neurological status remained significantly affected:

  • Unable to remember events from the same day
  • Required reminders for every medication dose
  • Needed supervision during meals due to reduced appetite and mild coordination difficulty
  • Occasionally could not recognise visitors
  • Mild left arm and leg weakness persisted
  • High risk of falls due to balance problems and weakness
  • Episodes of confusion, more noticeable in the evenings and at night
  • Dependent for medication management and financial tasks
  • Required assistance with bathing and dressing
Why Discharge to Home Was Considered

The surgical wound was closing. There was no active surgical complication requiring ICU stay. The oncology plan involved outpatient radiotherapy and chemotherapy cycles. Keeping her in the hospital longer would not change her tumour prognosis but would expose her to hospital-acquired infections and further deconditioning. The treating neuro-oncologist therefore recommended structured home healthcare.


Why Home Healthcare Was Needed

Discharging a patient with Glioblastoma Grade IV to an unstructured home environment carries significant risk. The treating neuro-oncologist advised comprehensive home care for specific clinical reasons.

Cognitive Supervision

With short-term memory loss and confusion episodes, the patient could not reliably call for help, follow safety instructions, or report symptoms. Continuous supervision was needed to prevent accidents such as leaving the gas stove on, wandering, or taking wrong medications.

Seizure Monitoring

Focal seizures can escalate to generalized seizures. A caregiver trained in seizure first aid needed to be present at all times. The family had witnessed one seizure at home already and needed professional support for ongoing monitoring. Understanding emergency warning signs in elderly patients is critical in such situations.

Medication Safety

She was on anti-epileptics, corticosteroids (being tapered), temozolomide, anti-hypertensives, and thyroid medication. Missing a dose or taking an incorrect dose could have serious consequences. Steroid-induced diabetes added another layer of complexity, requiring blood glucose monitoring alongside medication administration. Structured medication monitoring and management by a trained nurse reduces these risks significantly.

Surgical Wound Observation

The craniotomy wound needed daily observation for signs of infection, swelling, or cerebrospinal fluid leakage. This requires clinical training that family members typically do not have.

Mobility and Fall Prevention

Left-sided weakness combined with cognitive impairment made falls highly likely. Fall prevention for seniors in Gurgaon homes involves environmental modifications, supervised mobility, and assistive devices. All of these needed to be implemented quickly after discharge.

Nutritional Support

Moderate malnutrition at discharge meant she needed assisted feeding, calorie tracking, and diet modification. Poor nutrition would slow wound healing and reduce her tolerance for ongoing chemotherapy and radiotherapy.

Caregiver Burnout Prevention

The husband and daughter were the primary caregivers. Without professional support, the physical and emotional demands of 24-hour care for a patient with cognitive impairment, seizure risk, and mobility problems would lead to rapid caregiver exhaustion. Caregiver burnout is a well-documented risk in neuro-oncology home care.


Home Care Plan by AtHomeCare

Based on the discharge summary and the neuro-oncologist’s recommendations, a structured home care plan was created. The plan was designed to address every identified clinical need while keeping the patient comfortable in her own home.

Skilled Home Nursing

A trained nurse was assigned to provide home nursing care. The nurse’s responsibilities included medication administration at correct times, blood glucose monitoring for steroid-induced diabetes, surgical wound observation and dressing, vital sign recording, and coordination with the treating oncologist for chemotherapy follow-up visits.

Full-Time Patient Attendant

A trained patient care attendant was deployed for 24-hour supervision. The attendant assisted with activities of daily living including bathing, dressing, toileting, and feeding. More importantly, the attendant provided continuous presence to manage seizure risk, prevent falls, and support the patient during confusion episodes, especially at night.

Physiotherapy at Home

A physiotherapist visited regularly to address the left-sided weakness and balance problems. The programme focused on physiotherapy at home in Gurgaon, including supervised walking, balance training, range-of-motion exercises for the left arm and leg, and safe transfer techniques. The goal was not full recovery of strength, but maintaining functional mobility for as long as possible and preventing complications of immobility such as joint contractures.

Speech and Cognitive Stimulation

Structured cognitive activities were introduced. These included simple word-finding exercises, memory games using familiar objects and family photographs, conversation practice, and orientation exercises (time, place, person). The approach was adapted from principles used in dementia and Alzheimer’s care at home, though the underlying cause here was different.

Nutritional Support

The nursing team worked with the family to prepare calorie-dense, easy-to-swallow meals. Eating was supervised to prevent choking. Intake was documented daily. The importance of nutrition and hydration in elderly care is well established, and it becomes even more critical during active cancer treatment.

Pressure Injury Prevention

Although the patient was not fully bedridden, her reduced mobility and nutritional status placed her at risk for pressure injuries. A repositioning schedule was followed, skin was inspected daily, and an appropriate mattress surface was arranged. Detailed guidance on pressure ulcer prevention in elderly home care was applied.

Seizure Safety Protocol

The home team was trained in seizure first aid. Medications were given on strict schedules. The environment was made safe: sharp edges padded, walking areas cleared, and the patient was never left alone near stairs or in the bathroom.

Family Caregiver Education

The husband and daughter were taught to recognise warning signs such as increased confusion, new weakness, seizure activity, wound changes, and signs of infection. They were also guided on how to assist with transfers safely. Choosing the right home caregiver and understanding their role is an important part of the process.

Oncology Follow-Up Coordination

The nursing team maintained a log of symptoms, medication responses, and functional changes. This log was shared with the treating oncologist at each follow-up visit, ensuring continuity between home care and hospital-based treatment.


Recovery Timeline

Week 2 of Home Care

The surgical wound had healed well with no signs of infection. There was no recurrence of seizures. The patient’s appetite began improving with supervised meals and diet modifications. Pain control was better managed at home compared to the hospital environment.

The family reported feeling more confident having a trained team present. The night-time confusion episodes continued but were managed safely by the attendant.

Wound Care Seizure Observation Family Support
Month 1 of Home Care

The patient began walking indoors with supervision. Her left-sided weakness had not fully resolved, but she could move short distances with support. She started recognising close family members more consistently.

Her participation in conversations improved. Although word-finding difficulty persisted, she could communicate basic needs more reliably. Sleep patterns also improved with a structured evening routine that reduced sundowning episodes.

Blood glucose levels were being monitored regularly and managed alongside the steroid taper as directed by the treating physician.

Physiotherapy Glucose Monitoring Cognitive Exercises
Month 3 of Home Care

The patient completed her planned radiotherapy as an outpatient. Throughout the radiation course, the home team managed fatigue, skin care near the treatment site, and nutritional support.

Her neurological examination remained stable. There was no dramatic improvement in memory, but she could perform simple daily routines with verbal prompts. She could brush her teeth with guidance, recognise when it was mealtime, and participate in short conversations.

Most importantly, there were no hospital readmissions during this period. This is a significant outcome for a Glioblastoma patient, where infections, falls, and seizure complications frequently lead to emergency admissions.

Radiotherapy Support Stable Neurological Status ADL Training
Month 5 of Home Care

Home-based rehabilitation continued. The family reported improved confidence in managing daily care routines. They had learned to assist with transfers, manage meals, and recognise when to seek medical advice.

Symptom control remained good. Pain was managed. No seizures had occurred since discharge. Nutrition had improved from the moderately malnourished state at discharge. The patient’s quality of life, while affected by the underlying disease, was meaningfully better than it would have been without structured home support.

The patient continued her oncology follow-up and chemotherapy as planned.

Caregiver Confidence Symptom Control Ongoing Oncology Care

Documented Clinical Observations

The following tables summarize the functional changes observed during home care. These are based on direct nursing documentation and family-reported observations. Specific laboratory values and vital sign readings from hospital records are not reproduced here to protect patient confidentiality.

Functional Status Over Time

ParameterAt DischargeWeek 2Month 1Month 3Month 5
Memory (Same-Day Events)Unable to recallMinimal improvementRecognised close family consistentlyPerformed routines with promptsMaintained with prompts
CommunicationSignificant word-finding difficultySlight improvementBetter participation in conversationCould communicate basic needsStable communication
MobilityHigh fall risk, needed supportStanding with assistanceWalking indoors with supervisionStable indoor mobilityMaintained mobility
Nutritional IntakeModerately malnourishedImproved appetiteSupervised meals, better intakeAdequate oral intakeMaintained nutrition
Seizure ControlOn anti-epileptics, risk presentNo recurrenceNo recurrenceNo recurrenceNo recurrence
Evening ConfusionFrequent episodesStill presentReduced with routineManaged with structureControlled
Surgical WoundHealing, required observationWell healedFully healedNo issuesNo issues
Hospital ReadmissionsNot applicableNoneNoneNoneNone

Care Interventions Delivered

InterventionFrequencyClinical Purpose
Medication AdministrationDaily, scheduled dosesAnti-epileptics, steroids, chemotherapy, anti-hypertensives, thyroid medication
Blood Glucose MonitoringDaily or as directedManage steroid-induced diabetes
Wound ObservationDaily until healedDetect infection or CSF leakage early
Physiotherapy SessionsMultiple times per weekMaintain mobility, prevent contractures, improve balance
Cognitive StimulationDaily, short sessionsSupport communication, maintain engagement
24-Hour SupervisionContinuousSeizure safety, fall prevention, confusion management
Nutritional SupportEvery mealAddress malnutrition, ensure adequate intake during treatment
Skin and Pressure CareDailyPrevent pressure injuries
Family EducationOngoingBuild caregiver confidence, teach warning signs
Oncology CoordinationAt each follow-upShare home observations with treating team

Medical Author

Dr. Ekta Fageriya
Dr. Ekta Fageriya, MBBS
RMC Registration No.: 44780
Specialization: Geriatric Medicine
Clinical Experience: 7 Years

Supporting Clinical Documents

The following documents from the patient’s hospital course were referenced in preparing this case study. Specific patient identifiers and detailed report contents are not reproduced to maintain confidentiality.

Hospital Discharge Summary
MRI Brain with Contrast Report
CT Brain Report
EEG Report
Complete Blood Profile Reports
Histopathology Report
Discharge Prescriptions
Nursing Progress Notes from Hospital
Home Care Nursing Documentation

Recovery Outcome

It is important to state clearly that Glioblastoma Grade IV remains an aggressive disease with a challenging prognosis. Home healthcare did not change the underlying diagnosis. What it did achieve was meaningful in the context of this patient’s quality of life and safety.

Mobility

The patient progressed from being at high risk of falls at discharge to walking indoors with supervision by month one. This mobility was maintained through month five. Physiotherapy prevented the rapid deconditioning that commonly occurs when brain tumour patients are discharged home without rehabilitation support.

Seizure Safety

No seizures occurred during the five months of home care. With a trained attendant present at all times and medication adherence ensured by the nursing team, this risk was managed effectively.

Nutrition

The moderately malnourished state at discharge improved steadily. Supervised feeding, diet modifications, and calorie tracking helped the patient tolerate her chemotherapy and radiotherapy better than she might have without nutritional support.

Cognitive and Communication Function

Short-term memory did not recover significantly, which is expected with this condition. However, structured cognitive stimulation and a consistent daily routine helped the patient participate in simple activities and maintain connection with her family. The evening confusion episodes became less frequent with a structured routine.

Medical Stability

There were zero hospital readmissions during the five-month period. For a patient with Glioblastoma on active treatment, this is a notable outcome. It suggests that the home care plan effectively addressed the most common post-discharge complications: infections, falls with injury, uncontrolled seizures, and medication errors.

Family Feedback

The family reported that having professional support at home reduced their anxiety significantly. The husband and daughter could participate in care without carrying the entire burden. They learned to manage daily routines and recognise when to seek medical advice.

Remaining Challenges

The underlying tumour continued to require active oncology management. Cognitive impairment persisted. The patient remained dependent for most activities of daily living. These are expected realities of Glioblastoma, and home healthcare was designed to work alongside these challenges, not eliminate them.

This case demonstrates that the value of home healthcare in complex neurological conditions lies in safety, comfort, complication prevention, and family support. It is not measured by dramatic recovery, but by whether the patient can remain at home safely during treatment.


Key Clinical Learnings

1
Gradual symptom onset in brain tumours is easy to miss. Memory changes, word-finding difficulty, and morning headaches in older adults deserve neurological imaging, even when progression is slow.
2
Post-craniotomy patients need more than a caregiver. Wound observation, seizure management, and medication safety require skilled nursing rather than untrained attendant care alone.
3
Steroid-induced diabetes in brain tumour patients is often underappreciated. Blood glucose monitoring must be part of the home care plan when high-dose corticosteroids are used.
4
Structured evening routines reduce sundowning-like confusion. Even when confusion has a structural brain cause rather than a neurodegenerative one, environmental consistency helps.
5
Zero readmissions in five months is a measurable outcome. In Glioblastoma patients on active treatment, avoiding emergency admissions for preventable complications is a valid quality indicator.
6
Family education is as important as clinical care. When caregivers understand warning signs and safe transfer techniques, they become part of the care team rather than passive observers.

Frequently Asked Questions

Can a Glioblastoma patient safely recover at home after surgery?

Yes, but only with professional home healthcare support. Glioblastoma patients face multiple risks after surgery including seizures, cognitive impairment, weakness, and medication complications. A trained nursing team and full-time attendant can manage these risks effectively, as documented in this case. The decision should always be made by the treating neuro-oncologist based on the individual patient’s condition.

What is the role of a home nurse in brain tumour post-operative care?

The home nurse manages medication administration (anti-epileptics, chemotherapy drugs, steroids, and existing medications), monitors blood glucose if steroids have caused diabetes, observes the surgical wound for infection, tracks vital signs, and coordinates with the oncology team during follow-up visits. Post-brain surgery neuro-nursing at home requires specific clinical training.

Why is physiotherapy needed after brain tumour surgery?

Brain tumours and their surgical removal can cause weakness on one side of the body (hemiparesis), balance problems, and reduced coordination. Without physiotherapy, these problems worsen due to disuse. Physiotherapy helps maintain range of motion, prevent joint stiffness, improve standing balance, and support safe walking. It does not reverse the underlying neurological damage but preserves function for longer.

How is seizure risk managed at home for brain tumour patients?

Seizure management at home involves strict medication timing, ensuring the patient never takes a missed dose, maintaining a safe environment (no sharp edges, supervised bathroom use, no swimming or cooking alone), having a trained person present at all times who knows seizure first aid, and knowing when to call for emergency help. The attendant and nurse are both trained in seizure response protocols.

What causes confusion in the evenings after brain surgery?

Evening confusion, sometimes called sundowning, can occur after brain surgery due to the combination of brain injury, fatigue, reduced sensory input as light decreases, and medication effects. In this patient’s case, the right frontal lobe tumour and surgery affected areas involved in executive function and attention. A structured evening routine with consistent lighting, reduced noise, and familiar activities helped reduce these episodes.

Why do steroids cause diabetes in brain tumour patients?

High-dose corticosteroids (like dexamethasone, commonly used to reduce brain swelling) increase blood sugar levels by promoting glucose production in the liver and reducing the body’s sensitivity to insulin. This is called steroid-induced hyperglycemia. It requires regular blood glucose monitoring and sometimes temporary diabetes medication. As steroids are tapered, blood sugar levels often improve.

What is the difference between a patient attendant and a nurse for this kind of care?

A patient care attendant provides 24-hour presence, assists with daily activities like bathing and feeding, and ensures basic safety. A nurse has clinical training to administer medications, monitor blood glucose, observe wounds, and make clinical judgements. In cases like Glioblastoma, both are needed together. The attendant handles continuous supervision and daily care while the nurse handles medical tasks and clinical monitoring.

How does home healthcare help with chemotherapy and radiotherapy follow-up?

The home care team does not deliver chemotherapy or radiotherapy. Instead, they manage the side effects and support the patient between hospital visits. This includes managing fatigue after radiotherapy sessions, monitoring for signs of infection (especially during chemotherapy when immunity is low), ensuring adequate nutrition, tracking symptom changes, and providing the oncologist with documented observations at each follow-up visit.

Is home healthcare suitable for all brain tumour patients after discharge?

No. The suitability depends on the individual patient’s condition at discharge. Patients with uncontrolled raised intracranial pressure, active surgical complications, unstable vital signs, or those requiring ventilator support may need hospital or ICU-level home care instead of standard home nursing. The decision must always be made by the treating neurosurgeon or neuro-oncologist.

How long can home care continue for a Glioblastoma patient?

Home care can continue for as long as the patient’s condition allows and the family wishes to keep them at home. In this case, care continued for at least five months. As the disease progresses, the focus of home care may shift from rehabilitation to comfort and palliative support. The care plan should be reviewed regularly with the treating oncologist and adjusted as needed.


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Medical Disclaimer

Every patient is unique. The clinical course, treatment response, and outcomes described in this case study are specific to this patient and should not be generalized. Treatment decisions must always be made by qualified healthcare professionals based on individual patient evaluation.

Emergency symptoms such as new seizures, sudden weakness, loss of consciousness, difficulty breathing, or signs of wound infection require immediate hospital care. Home healthcare complements but does not replace emergency medical services.

This case study is intended for informational purposes only and does not constitute medical advice. If you or a family member are facing a similar situation, please consult the treating neuro-oncologist or neurosurgeon for guidance specific to your case.

AtHomeCare. Trusted Home Healthcare in Gurgaon, Delhi NCR, and across India.

This case study has been documented following clinical publication standards. Patient identity has been protected throughout.

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