Relapsing Polychondritis Home Care in Mohali
Relapsing Polychondritis With Airway Awareness and Daily Activity Support in Mohali
How a structured home healthcare program helped a 48-year-old boutique owner in Mohali manage fatigue, joint discomfort, and airway vigilance after a hospital admission for relapsing polychondritis.
Patient Background
Mrs. Simran Bedi was a 48-year-old woman living in Mohali, Punjab. She ran a boutique and lived with her husband, Mr. Manpreet Bedi, who served as her primary caregiver. Her daughter, Ms. Jasleen Bedi, provided additional support.
Simran had experienced recurrent episodes of painful swelling around her ears, joint discomfort, fatigue, and intermittent hoarseness for approximately one year before her diagnosis.
In the early months, she received treatment for what appeared to be recurrent ear inflammation. However, the symptoms kept returning. Over time, the episodes became more noticeable and were accompanied by increasing fatigue and occasional discomfort around the nose and throat.
Her medical history also included:
- Mild osteoarthritis with intermittent knee discomfort that worsened during periods of reduced activity
- Controlled hypothyroidism with stable thyroid function on prescribed treatment
- Mild iron-deficiency anemia identified previously and kept under medical monitoring
She had no known chronic lung disease prior to this presentation.
Before her symptoms worsened, Simran managed her boutique independently. She handled customer interactions, fabric selection, and daily operations. Standing for long hours was part of her routine, though knee discomfort from osteoarthritis had occasionally made this difficult.
As the recurrent episodes of ear swelling and fatigue increased, she found it harder to complete full workdays. Household tasks that once felt routine began to require more effort. Her family noticed she needed more rest between activities.
Clinical Diagnosis
After repeated episodes failed to resolve with initial treatment, a rheumatology evaluation was pursued. Clinical assessment combined with imaging led to the diagnosis of relapsing polychondritis.
Relapsing polychondritis is a rare inflammatory condition characterized by recurrent inflammation of cartilage and other connective tissues throughout the body. It can affect the ears, nose, joints, respiratory tract, and other structures that contain cartilage.
Because the condition is uncommon and its symptoms can overlap with other disorders, diagnosis is often delayed. In Simran’s case, the initial focus on ear symptoms alone meant the broader pattern was not recognized immediately.
Her main symptoms at the time of diagnosis included:
- Painful swelling and tenderness of the ears
- Intermittent hoarseness
- Joint pain affecting multiple areas
- Persistent fatigue
- Nasal discomfort
- Reduced exercise tolerance
- Difficulty completing prolonged household or boutique activities
The presence of hoarseness and exertional breathing discomfort in a patient with known cartilage inflammation raises concern for possible respiratory tract involvement. This is one of the most clinically significant aspects of relapsing polychondritis because airway complications can develop and sometimes progress rapidly.
Hospital Treatment
Simran was hospitalized for 7 days after her symptoms worsened significantly. The admission allowed the medical team to assess her respiratory status, initiate specialist-directed treatment, and establish a follow-up plan.
She was admitted after developing:
- Increasing ear inflammation that was not responding to previous measures
- Worsening joint pain affecting her daily movement
- Persistent hoarseness that had become more noticeable
- Increasing fatigue limiting even basic activities
- Mild breathing discomfort during exertion
During her 7-day hospital stay, the medical team evaluated:
- Respiratory status and oxygen saturation at rest and during activity
- Upper airway symptoms including voice quality and breathing pattern
- Extent of ear and nasal cartilage involvement
- Joint symptoms and functional limitations
- Blood investigations including inflammatory markers
- Response to initiated medication
Importantly, she remained stable throughout the admission and did not require emergency airway intervention. However, the presence of hoarseness and exertional breathing discomfort meant that airway involvement could not be ruled out and required ongoing vigilance.
She was discharged with a specialist-prescribed anti-inflammatory and immunomodulatory treatment plan. The discharge instructions emphasized:
- Strict medication adherence without self-adjustment
- Monitoring for signs of disease flares
- Airway awareness and prompt reporting of respiratory changes
- Infection precautions given the immunomodulatory treatment
- Activity modification based on symptoms
- Regular rheumatology and respiratory follow-up appointments
Why Home Healthcare Was Needed
After discharge, Simran was medically stable but still faced several challenges that made professional home healthcare a clinically appropriate choice.
Her energy levels remained low. She could not complete a full day of household tasks without needing prolonged rest. This fatigue was not simply tiredness. It was related to the underlying inflammatory condition and needed to be distinguished from normal exertion.
Because relapsing polychondritis can involve the respiratory tract cartilage, someone needed to monitor her breathing, voice, and respiratory symptoms daily. Her family needed structured guidance on what to watch for and when to seek urgent help.
Joint pain and stiffness continued to limit her movement. Without guided activity, she risked further deconditioning. She needed a supervised rehabilitation program that respected her inflammatory limitations while preventing muscle weakness from inactivity.
Simran was anxious about her breathing symptoms. She worried about what worsening hoarseness might mean. Having a trained nurse present at home provided reassurance and ensured that any change was assessed promptly rather than being dismissed or ignored.
The period after hospital discharge is a vulnerable time for any patient with a complex inflammatory condition. Symptoms may be improving but have not fully resolved. Medication changes are recent. The family is still learning what to watch for. Post-hospital discharge care with professional nursing support bridges the gap between hospital and independent recovery.
Home Care Plan by AtHomeCare
The home healthcare program was designed around Simran’s specific needs: medication safety, airway monitoring, fatigue management, gentle rehabilitation, and family education. No medication was changed by the home care team independently.
The home nursing component formed the clinical backbone of the program. The nurse was responsible for structured daily assessments that went beyond basic vital sign checks.
Each day, the nurse documented:
- Blood pressure, heart rate, respiratory rate, temperature, and oxygen saturation
- Any change in voice quality or breathing pattern
- Ear and nasal cartilage appearance including swelling, redness, and tenderness
- Joint pain location and severity
- Fatigue level and its impact on daily tasks
- Medication adherence and any side effects
- Appetite and hydration intake
- Signs of infection such as fever or increasing pain
The nurse also maintained a medication monitoring chart to ensure Simran took her prescribed anti-inflammatory and immunomodulatory medications correctly. The family was instructed not to stop or adjust any medication without consulting the treating physician.
Because respiratory tract cartilage can be affected in relapsing polychondritis, the nurse and family were trained to watch for specific warning signs. These included new or worsening breathlessness, noisy breathing (stridor), persistent cough, increasing hoarseness, difficulty breathing during routine activity, and any sudden respiratory deterioration.
The home nurse did not attempt to diagnose airway involvement. Any significant respiratory change was communicated immediately to the treating physician. Severe breathing difficulty, significant noisy breathing, inability to speak normally because of breathlessness, or rapidly worsening symptoms required urgent medical evaluation. This approach aligns with early warning sign recognition protocols used in professional home healthcare.
A trained patient attendant was assigned to assist with physical tasks that Simran could not safely manage alone during her recovery period. This was not medical care. It was practical daily support.
The attendant helped with:
- Heavy household activities such as cleaning that required prolonged standing or lifting
- Carrying boutique supplies and organizing materials for light work Simran could do from home
- Grocery shopping and outdoor errands
- Transportation to follow-up appointments
This support was important because it allowed Simran to conserve energy for rehabilitation and recovery rather than spending her limited stamina on physically demanding chores. The patient care services model ensures that non-medical assistance is delivered by trained staff who understand the importance of not overexerting a patient with an inflammatory condition.
The physiotherapy at home program was carefully designed to maintain mobility without aggravating inflammatory symptoms. The physiotherapist understood that exercise in relapsing polychondritis must be individualized. Pushing too hard during active inflammation can worsen symptoms, while doing too little leads to deconditioning, muscle weakness, and further fatigue.
The rehabilitation program included:
- Gentle range-of-motion exercises to preserve joint mobility in affected areas
- Sit-to-stand exercises to maintain functional leg strength for daily transfers
- Lower-limb strengthening at a controlled intensity to support walking tolerance
- Balance exercises to reduce fall risk during periods of fatigue
- Short walking sessions with gradual distance progression
- Gentle stretching to address stiffness from both the inflammatory condition and reduced activity
- Activity pacing and energy-conservation techniques to help Simran structure her day without exhausting herself
Exercise intensity was adjusted at every session based on Simran’s fatigue level, joint symptoms, and overall condition that day. The at-home physiotherapy approach allowed the therapist to observe her in her actual living environment and tailor activities to her real daily demands.
A doctor home visit was arranged for specific situations that required prompt medical evaluation without the stress of traveling to a hospital. These situations included:
- New or worsening breathing difficulty
- Persistent or increasing hoarseness
- New onset of noisy breathing
- Significant ear or nasal inflammation suggesting a disease flare
- Fever, which could indicate infection or a flare
- Increasing joint pain not controlled by the current medication plan
- Any medication-related concerns or possible side effects
This arrangement ensured that medical review was accessible without requiring Simran to travel when she was already experiencing symptoms. It also reduced the risk of delayed recognition of a developing flare.
The home setup included simple but essential medical equipment to support safe monitoring:
- Digital blood pressure monitor
- Digital thermometer
- Pulse oximeter for oxygen saturation
- Medication organizer for daily adherence
- Symptom diary for tracking changes over time
- Exercise chair for supervised rehabilitation
- Bathroom grab rail for safety
- Non-slip bathroom mat for fall prevention
Daily Care Plan
Each day followed a structured routine that balanced rest, monitored activity, rehabilitation, and symptom tracking. The routine was flexible enough to accommodate days when Simran felt more fatigued.
- The nurse reviewed Simran’s breathing and voice symptoms overnight and that morning
- Prescribed medications were administered and documented
- Breakfast was taken with adequate hydration
- Gentle mobility exercises were completed under guidance
- A short walking session was attempted within her tolerance
- Rest was scheduled before beginning any household activities
- Lunch followed by a scheduled rest period
- Physiotherapy session was conducted during this window
- Hydration was encouraged throughout
- Light household or boutique-related administrative work was attempted from home
- Joint discomfort was monitored during and after activity
- Gentle walking and stretching to prevent stiffness from daytime rest
- Dinner and evening medication
- A final review of breathing and voice changes was documented
- Before bedtime, the medication schedule for the next day was reviewed
- Respiratory symptoms were recorded in the symptom diary
- The family ensured the emergency contact plan was readily accessible
- Adequate rest was encouraged to support recovery
Risks Being Monitored
The home healthcare team maintained continuous vigilance for several categories of risk, each with a different level of urgency.
Airway involvement: Increasing breathlessness, noisy breathing, voice changes, or sudden respiratory deterioration requiring urgent hospital evaluation
Respiratory infection: Fever, new cough, or worsening breathing that could complicate the underlying condition, especially while on immunomodulatory treatment
Recurrent cartilage inflammation: New ear swelling, nasal discomfort, or deformity suggesting a disease flare requiring specialist review
Joint inflammation: Increasing joint pain, new joint involvement, or reduced mobility that might indicate worsening disease activity
Medication adverse effects: Any new symptoms that could be related to anti-inflammatory or immunomodulatory treatment
Excessive fatigue and reduced mobility: Progressive decline in functional ability suggesting deconditioning or worsening disease
Sudden or severe breathing difficulty, significant noisy breathing, inability to speak normally because of breathlessness, or rapidly worsening respiratory symptoms were identified as clear triggers for urgent medical evaluation. The family was instructed not to wait for a scheduled visit in these situations. This is consistent with emergency response readiness principles in home healthcare settings.
Recovery Timeline
The 12-week program showed gradual, measurable improvement in function and symptom management. It is important to note that this improvement reflected better conditioning and symptom control, not a cure for the underlying disease.
The first home assessment found Simran alert and comfortable while resting. Her vital signs were stable with blood pressure at 118/74 mmHg, heart rate 80 beats per minute, respiratory rate 17 per minute, temperature 98.0 degrees Fahrenheit, oxygen saturation 98 percent on room air, and pain score 3 out of 10.
She reported mild ear tenderness, intermittent joint pain, fatigue, reduced walking tolerance of approximately 240 metres, occasional hoarseness, and difficulty standing for prolonged periods. She remained independent with personal care including feeding, dressing, bathing, grooming, and toileting.
- Nursing established baseline vitals and symptom documentation
- Family received initial education on airway warning signs
- Physiotherapy assessment completed; gentle exercises initiated
- Medication chart set up for daily tracking
The daily routine became more established. Simran began to understand her energy limits and how to structure her day around planned rest periods. The physiotherapist introduced activity pacing techniques that helped her distinguish between fatigue from inflammation and fatigue from overexertion.
- Vital signs remained stable throughout this period
- No new respiratory symptoms developed
- Walking sessions remained short but were completed consistently
- The attendant took over heavy household tasks, reducing her physical burden
- Family became more confident in recognizing and reporting symptoms
By the fourth week, Simran became more consistent with activity pacing. Her fatigue after household activities noticeably decreased. She was not symptom-free, but she was managing her symptoms more effectively.
- Fatigue after standard household tasks reduced compared to week one
- Joint stiffness was better managed with regular exercises
- No disease flare or airway event occurred
- Medication adherence was documented as consistent
Her comfortable walking distance increased to approximately 290 metres, up from 240 metres at the start of care. This represented a meaningful functional gain for someone whose daily life required movement within her home and for brief outdoor trips.
- She resumed light boutique-related administrative work from home
- The physiotherapist gradually increased exercise duration within her tolerance
- Hoarseness remained intermittent and had not worsened
- Rheumatology follow-up continued as scheduled
Simran was now able to perform light household activities with fewer rest periods. Her joint mobility had improved with regular exercises. The energy-conservation techniques she learned were being applied naturally throughout her day.
- Light household tasks completed with less fatigue
- Joint range of motion improved on assessment
- Sit-to-stand transfers became easier and more fluid
- Balance exercises showed measurable improvement in stability
- No airway symptoms developed at any point during the program
At the formal 12-week assessment, the following was documented:
- Personal care remained fully independent
- Walking distance increased to approximately 360 metres
- Joint stiffness was better managed with ongoing exercises
- Fatigue during routine activities had decreased
- Prescribed treatment was continued consistently
- No emergency airway event occurred during the entire documented period
- Rheumatology follow-up remained ongoing
The improvement at 12 weeks represented better functional conditioning and symptom management. It did not indicate a cure for relapsing polychondritis. The underlying inflammatory condition remains chronic and requires ongoing specialist care. Home healthcare complemented but did not replace her rheumatology and respiratory follow-up.
Clinical Evidence
The following tables document the clinical measurements recorded during the home care period.
Initial Vital Signs at First Home Assessment
| Parameter | Finding | Reference Range |
|---|---|---|
| Blood Pressure | 118/74 mmHg | Below 120/80 mmHg |
| Heart Rate | 80 beats/min | 60 to 100 beats/min |
| Respiratory Rate | 17/min | 12 to 20/min |
| Temperature | 98.0 degrees F | 97.0 to 99.0 degrees F |
| Oxygen Saturation | 98% on room air | 95% or above |
| Pain Score | 3/10 | 0/10 (no pain) |
Functional Status Progression
| Parameter | Week 1 | Week 6 | Week 12 |
|---|---|---|---|
| Walking Distance (comfortable) | Approx. 240 metres | Approx. 290 metres | Approx. 360 metres |
| Personal Care | Independent | Independent | Independent |
| Heavy Household Tasks | Required assistance | Required assistance | Required assistance |
| Light Household Tasks | Required rest periods | Fewer rest periods | Managed with minimal rest |
| Boutique Work | Unable | Light admin from home | Light admin from home |
| Joint Mobility | Restricted by pain | Improving | Better managed |
| Fatigue Level | High after activity | Moderate | Decreased during routine tasks |
| Airway Event | None | None | None |
Activities of Daily Living Classification
| Activity | Status at Week 1 |
|---|---|
| Feeding | Independent |
| Dressing | Independent |
| Bathing | Independent |
| Grooming | Independent |
| Toileting | Independent |
| Communication | Independent |
| Light household activities | Independent with fatigue |
| Prolonged boutique work | Required assistance |
| Carrying heavy materials | Required assistance |
| Heavy household cleaning | Required assistance |
| Extended outdoor errands | Required assistance |
Family Education
Family education was a critical component of this program. In a rare condition like relapsing polychondritis, the family often becomes the first line of symptom recognition between professional assessments.
The family was taught that respiratory symptoms should never be ignored in this condition. They were instructed to report immediately if Simran developed:
- Increasing hoarseness that persisted or worsened over hours
- New noisy breathing, especially a whistling sound during breathing in
- A persistent cough that was not related to a cold
- Breathlessness that occurred during routine activities that were previously manageable
- Any difficulty breathing that felt different from her usual pattern
Severe breathing difficulty was clearly communicated as requiring urgent hospital assessment, not a wait-and-see approach. This education addressed a common concern highlighted in why families sometimes miss early warning signs in chronic conditions.
Simran used a medication chart that was reviewed daily by the home nurse. Her family was specifically advised that immunomodulatory and anti-inflammatory medications must not be stopped or adjusted without direct guidance from the treating physician. Even if she felt better, stopping medication could trigger a flare.
The family learned practical strategies to help Simran manage her daily activities:
- Breaking demanding tasks into smaller, manageable portions
- Scheduling planned rest breaks before fatigue became overwhelming
- Avoiding prolonged standing by using a chair for boutique-related work
- Using comfortable working positions that did not strain affected joints
- Recognizing that exercising through significant joint pain was not helpful and could worsen inflammation
Because some treatments for relapsing polychondritis can affect immune function, the family was encouraged to follow the treating physician’s recommendations regarding infection prevention measures and vaccination. This included hand hygiene, avoiding contact with people who had active infections, and ensuring recommended vaccinations were up to date.
Recovery Outcome
At the conclusion of the 12-week documented period, the following outcomes were observed.
What Improved
- Functional endurance for daily tasks
- Walking distance and stamina
- Joint mobility with regular exercises
- Fatigue management through pacing
- Family confidence in symptom recognition
- Consistency in medication adherence
What Remained
- Underlying inflammatory condition is chronic
- Occasional hoarseness persisted
- Heavy tasks still required assistance
- Ongoing specialist follow-up needed
- Need for continued airway vigilance
- Long-term medication management required
The functional gains achieved over 12 weeks were meaningful for Simran’s daily quality of life. However, relapsing polychondritis is a chronic condition with a variable course. The improvements documented here represent better symptom management and functional conditioning within a controlled home care environment. They do not predict the long-term disease trajectory. Continued rheumatology supervision remains essential.
Key Clinical Learnings
This case highlights several important clinical considerations relevant to home healthcare for patients with rare inflammatory conditions.
- Relapsing polychondritis is rare but clinically significant. Its symptoms can initially mimic more common conditions like recurrent ear infections. A high index of suspicion is needed when ear inflammation recurs alongside joint symptoms, hoarseness, or nasal discomfort. Delays in diagnosis are common and can lead to complications.
- Airway involvement is the most dangerous complication. While not every patient develops respiratory tract involvement, it can occur and may progress. New hoarseness, noisy breathing, or worsening breathlessness should never be dismissed as minor. Families need clear, specific instructions on when to seek urgent help rather than vague advice to “watch for breathing problems.”
- Home monitoring must be structured, not casual. Checking whether a patient “seems fine” is not adequate for a condition that can affect the airway. Daily documentation of voice quality, breathing pattern, oxygen saturation, and symptom changes creates a record that helps identify trends and triggers early intervention.
- Rehabilitation must respect inflammation. Unlike post-surgical rehabilitation where pushing through discomfort is often appropriate, exercising through active joint inflammation in relapsing polychondritis can be counterproductive. The physiotherapy program must be flexible, adjusting daily based on the patient’s inflammatory status.
- Fatigue in inflammatory conditions is not laziness. It is a real symptom that limits function and affects quality of life. Teaching patients energy-conservation techniques and activity pacing is as important as prescribing exercises. Without these strategies, patients either overexert themselves and worsen symptoms or underexert themselves and develop deconditioning.
- Medication safety in immunomodulatory treatment requires oversight. Patients on these medications may feel better and consider stopping treatment. They may also be at increased infection risk. Medication safety monitoring at home ensures adherence and helps identify side effects early.
- Home healthcare complements specialist care, it does not replace it. The home team monitored symptoms, supported rehabilitation, educated the family, and facilitated communication with the treating physicians. All treatment decisions, medication adjustments, and disease activity assessments remained with the rheumatology and respiratory specialists.
Medical Author
Dr. Ekta Fageriya, MBBS
Supporting Clinical Documents
This case study was developed based on the clinical scenario described. The following types of documents would typically form part of a complete case record. Specific documents were not uploaded for this fictional case.
- Discharge Summary: Hospital discharge documentation detailing admission findings, treatment administered, and discharge medications
- Blood Investigations: Inflammatory markers, complete blood count, thyroid function tests, iron studies
- Radiology Reports: Imaging studies used to support the diagnosis and assess cartilage involvement
- Prescriptions: Specialist-prescribed medications at discharge and during follow-up
- Progress Notes: Clinical notes from rheumatology and respiratory follow-up visits
- Home Care Records: Daily nursing documentation, physiotherapy notes, and symptom diary entries
No confidential patient information is exposed in this document. All patient details are fictional.
Frequently Asked Questions
Common questions about relapsing polychondritis and home healthcare support for this condition.
Relapsing polychondritis is a rare inflammatory disorder that can repeatedly affect cartilage in areas such as the ears, nose, joints, and respiratory tract. It causes episodes of swelling, pain, and sometimes structural damage to cartilage-containing tissues. The pattern of flares and remissions varies considerably between patients.
Yes. In some patients, inflammation can involve cartilage within the respiratory tract, including the larynx, trachea, and bronchi. When this happens, the airway can become narrowed or weakened. This is one of the most serious potential complications of the condition and requires prompt medical attention.
New or worsening hoarseness can sometimes indicate involvement of structures around the airway, particularly the larynx. While hoarseness can have many common causes such as acid reflux or a viral infection, in a patient with known relapsing polychondritis, persistent or worsening voice changes should be discussed with the treating physician to rule out airway involvement.
Individualized physiotherapy can help preserve joint mobility, maintain muscle strength, improve balance, and support functional independence. However, the exercise program must be carefully adjusted based on the patient’s current inflammatory status. Exercising through active joint inflammation is generally not recommended. A physiotherapist experienced in inflammatory conditions can design an appropriate program.
Not necessarily. Appropriate activity can help prevent deconditioning, maintain muscle strength, and improve overall function. However, exercise should be adjusted according to fatigue levels, current inflammation, pain, and medical recommendations. Complete inactivity can be as harmful as overexertion. The goal is to find a sustainable level of activity that maintains function without triggering flares.
Severe breathlessness, significant noisy breathing (especially a whistling sound when breathing in), rapidly worsening respiratory symptoms, or difficulty speaking because of breathlessness all require urgent medical evaluation. These symptoms may indicate airway involvement that needs immediate assessment in a hospital setting. Families should not wait for a scheduled appointment if these symptoms develop.
Home nursing can monitor vital signs, respiratory symptoms, voice changes, cartilage involvement, medication adherence, fatigue, mobility, and signs of infection. However, the home nurse does not replace the specialist. Disease activity assessment, treatment decisions, and medication adjustments remain the responsibility of the treating rheumatologist and respiratory physician. Home nursing acts as a bridge between hospital visits, providing continuous monitoring and early warning of changes.
It is a chronic inflammatory condition. There is currently no known cure. Treatment aims to control inflammation, prevent complications, preserve organ function (particularly airway function), and maintain quality of life. With appropriate medical management and monitoring, many patients can achieve good symptom control, though the disease course varies significantly between individuals.
The nurse provided clinical monitoring, symptom assessment, medication oversight, and health education. The attendant provided practical daily assistance with physically demanding tasks like carrying supplies, cleaning, and errands. These are different roles. The nurse does not perform household chores, and the attendant does not perform clinical assessments. Both roles together addressed Simran’s full range of needs during recovery.
Family education is critically important because the family is present between professional assessments. In relapsing polychondritis, airway symptoms can sometimes progress quickly. If family members do not recognize the warning signs or do not understand the urgency of certain symptoms, there can be dangerous delays in seeking care. Educated families can act as an effective early warning system, communicating changes to the healthcare team promptly.
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Medical Disclaimer
This case study is entirely fictional and created solely for educational purposes. It does not represent a real patient. Any resemblance to actual individuals is purely coincidental. The information provided is intended for education only and should not be used as a substitute for professional medical advice, diagnosis, or treatment.
Every patient is unique. Treatment decisions must always be made by qualified healthcare professionals based on individual clinical assessment. Emergency symptoms require immediate hospital care. Home healthcare complements, but does not replace, emergency medical services.
AtHomeCare provides home healthcare services including home nursing, physiotherapy at home, patient attendant services, and doctor home visits across multiple cities including Chandigarh, Mohali, and Panchkula, Delhi NCR, and other locations. All clinical decisions are made by qualified medical professionals.